Posted in Autism, Childhood, Family, Observations, Parenting, tagged ASD, Autism, Autism Spectrum Disorder, Blogging, Childhood, children, Communication, Compassion, Diagnosis, Family, Friendship, Girlfriends, Gratitude, Judgment, Julia, Marty, Parenting, speech, Will, Writing on November 9, 2012|
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Will is on the couch fidgeting in his peripheral vision with a piece of frayed green yarn, artfully and very deliberately coated in masking tape by my hands under Will’s nonverbal instructions. Julia is watching Madagascar 3 for the thousandth time, and Marty, my soon-to-be-ex-husband and the kids’ loving dad, is in the kitchen blessedly making coffee. And me? I am at my desk, thinking about the article that ran about my little family in this morning’s Independent Florida Alligator.
Will was around 3 in this picture, but it’s one of my all-time favorites.
The reporter, Colleen Wright, a UF sophomore, showed up last week at my garage sale, having heard that my goal was to raise money so I can move to California where, while I don’t expect to arrive into some kind of Oz filled with free speech therapy centers on every corner, there are most definitely a lot more options and available, affordable, accessible services for a child like my son, Will, who, at 7 and a half, is nonverbal (we always say “preverbal,” because we remain hopeful) and has autism, OCD, sensory integration dysfunction, and a host of chronic health challenges. Wright questioned me for an hour that morning, respectful and inquisitive, but clearly with no background in autism. (more…)
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Posted in Autism, Parenting, tagged Autism, Compassion, Friendship, Gratitude, Judgment, Julia, Kindness, Laura, Parenting, Shopping, Strangers, Will on December 25, 2008|
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by Tara Cohen
My friend Laura was recently at one of those big-box-nothing-under-100-pounds-can’t-escape-for-less-than-100-dollars behemoth warehouse stores with her husband and daughter, and she thought of me. Now, Laura, being the conservationist-social activist-cloth-diapering-vegetarian that she is, is not a huge fan of oversized portions of toxic plastic crap, so it’s worth noting that they were picking up bulk consumables like kitty litter and rice, not single-use plastics and disposable diapers. As they perused the streets of this indoor mecca o’ stuff, Laura loaded their cart with a super-mega-ultra-jumbo bag of cat food and noticed a woman staring at her with something like disapproval on her face.
Now, me, I’m used to strangers’ stares because children with autism, like my son Will, do tend to become the main attraction when they’re upset. I should charge for tickets to “The Will Show” for as long as some people stare at us. When that child is upset, throwing things, hitting, full-body-flailing in the stroller, crying, or all of the above (yes, that happens, and often), people shake their heads at us. They do the “Wow. That’s one bratty kid” double eyebrow raise. They roll their eyes, cluck their tongues, whisper their disapproval to each other, and stare at me with their appalled “Well, I never” expressions when I don’t look adequately humiliated. But we are living in the year 2 A.D. (that’s “After Diagnosis”) in my house, and I’ve had enough time to learn that my kid absolutely has to come first, and explaining ourselves to strangers takes a last-row-of-a-15-passenger-van type of back seat to taking care of his needs.
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